I know several people with a CaringBridge Site. I even set one up, but I started to think, “who would visit?” All the people who ask us how we are? Well, they know. All the people that don’t want to know? I don’t think so. All the people that think, after 19 months that we should be “over it?” Three strikes. Out.
So, I don’t give out the address. But, tonight, I thought I’d take another peek at it, while I was checking the sites of 2 friends. Did you see the “RESOURCES” link?
Clicks you RIGHT to the CDC. No opting out. They have a “partnership”.
So, according to the CDC, Lyme Disease isn’t really a big deal.
I will credit them with this, though. They do say, “if left untreated, infection can spread to joints, the heart, and the nervous system.” They decided to ignore all the studies that show that Lyme LOVES brain tissue. But at least they mentioned that it can spread. Even if they didn’t add, “Like a fricken wild fire” or mention, “it can cross the placenta and has been found in semen and vaginal fluids”.
But I love this about Bartonella:
Yikes! No rough play with your cats or you might get Bartonella. Again, no mention of the sexual transmission or the congenital situation I’m living. Nope.
And my favorite:
Did you know that most people don’t have symptoms and that there is effective treatment? Okay. Maybe if you KNOW you have been infected.
I will give them credit, though. They list this if you dig deeper into their site:
Babesiosis can be a severe, life-threatening disease, particularly in people who:
do not have a spleen or whose spleen does not function normally;
have a weak immune system for other reasons (such as cancer, lymphoma, or AIDS); or lyme. . duh.
have other serious health conditions (such as liver or kidney disease); or
Complications of babesiosis can include:
a low and unstable blood pressure;
severe hemolytic anemia (hemolysis);
a very low platelet count (thrombocytopenia);
disseminated intravascular coagulation (also known as “DIC” or consumptive coagulopathy), which can lead to blood clots and bleeding;
malfunction of vital organs (such as the kidneys, liver, lungs, and heart); or
But, dig even deeper and find this:
The main way is through the bite of an infected tick—during outdoor activities in areas where babesiosis is found (see below).
A less common way of becoming infected is by getting a transfusion from a blood donor who has a silent Babesia infection. (No tests have been licensed yet for screening blood donations for Babesia.)
A few possible cases of congenital transmission—from an infected mother to her baby (during pregnancy or delivery)—have been reported.
SCORE! But seriously? If my Caringbridge visitors read the front page of the illnesses that we have they will all be scratching their heads thinking we just like attention.
Yeah. . I love the attention I get from the HUGE open sore on my neck, that won’t heal because my immune system doesn’t seem to be working. I love the looks I get at my dirty hair and my limp and the brace around my hips.
Besides, do I really want to know how many folks check in on my site? I think that might be depressing.